As it’s ME Awareness Week…

It’s a living hell

I’m lazy they say
It’s all in the mind
It’s just that I’m not really trying
I’d like to get up
I’d like to go out
I’m too tired to even be crying

It takes all my strength
To get to the loo
Although they think I should be at school
To get some fresh air
To still have a friend
Wouldn’t that make my life just so cool

If I go downstairs
Or even get washed
These are times when I’ve really done well
I pay for it though
The following day
When my muscles and bones ache like hell

Yes I look ok
I talk, even laugh
But with this illness, symptoms aren’t seen
My mind is just mush
Words come out all wrong
I’m nothing. Just a broken machine

It’s been four years now
I’m sixteen you know
All you go through in that time has gone
The doctor told me
There’s no cure for this
There’s a chance it’ll go on and on…

If you have ME
Then your suffering
Is the same size as dying of AIDS
Except that for me
It won’t end in death
I could feel just as bad for decades

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